We're still fighting

Voices of Winged Warriors unites grievers, Warriors, and allies through programs and activities that help transform life with sickle cell.

For Grievers

If your sickle cell warrior has passed away, Voices of Winged Warriors (VoWW) is here for you. This collective of caregivers, loved ones, and allies left behind still wants to educate, advocate, and drive action for better sickle cell outcomes.

While great strides are being made in sickle cell research, it hasn’t come in time for too many warriors. World-wide, every day, more than 1,000 individuals lose their lives to sickle cell. We know how that feels and we want to do more.

Together at VoWW, we can honor our warriors and help create change for a better future.

For Warriors & Caregivers

Great strides are being made in sickle cell research. They've brought cures and transformation to many, but we know that isn't every Warrior's reality - whether by choice or by chance.

So, in the meantime, Voices of Winged Warriors aims to keep you well. From everyday health maintenance to ongoing care management and emergency room guidelines. We're coordinating programs and collaborating with others to help get the right care for individuals with sickle cell.

VoWW wants a different world for you and we're fighting for it every day.

If you're here as an ally - thank you! Your support is priceless.

Save the date

We know grief is just a memory away. Join us every first Thursday from 8-9 p.m. EST to honor and remember. Next call: Thursday, Nov. 6.

LEARN MORE

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VOWW Founder & CEO Stefanie Worth and Board Member, Versetta Brown, were on hand for the Heal Together Sickle Cell Walk in Toledo, Ohio, on Saturday, September 20th.

Winged Warrior Thomas drawing on his iPad

A promise in a movement for change

Whether your loss was today, recently, or years ago, we know grief persists. We know you're in a club you never wanted to belong to. But, together we can be a tribe, finding our way forward while voicing a better world into existence for other warriors.

I'M INTERESTED

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Tell us about your Sickle Cell Warrior

Even though they've passed on, your Winged Warrior is important to you and their life matters. Here at VoWW, we will make space to memorialize our warriors and celebrate their lives. We encourage you to share their journey and yours.

SHARE YOUR STORY

Quality Emergency Department Care

One of VoWW's primary strategic goals is to move beyond awareness. Through Sickle Cell STAT, we work to help ensure that knowledgeable, quality, guideline-based emergency room treatment becomes the standard for every individual with sickle cell.