Board of Directors
Our Board of Directors and Advisory Council members bring diverse professional experiences to our work alongside deep personal attachments to sickle cell. Together, they provide insight and guidance, extend our reach, and help bring our transformative mission to life on behalf of Winged Warriors everywhere.
Advisory Council
From Our Founder
We speak for sickle cell Warriors who now speak through us. We’d rather have them here – healthy and thriving – but for so many reasons, they fell to this condition that is too often misunderstood, under researched, and medically mishandled. One life lost to sickle cell is one loved one too many.
As the mom of a 26-year-old Winged Warrior, this hits home for me. This mission comes from my heart. My hope is to create a tribe for us. Let's build a place for healing through community and strength through impact.
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At the end of every day, I want every Warrior to know that we’ve done everything in our power to ensure that you are strong in body, strong in mind. Alive, well, and living the heck out of your life.
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​Until that’s a reality, we’ll be here doing the work to make it happen. My promise to my Warrior is to make a difference in his honor.
That's my vow.
This is our VoWW.
Our Founder, Stefanie
pictured with her Winged Warrior, Thomas
Leaders wanted
Voices of Winged Warriors will continue to expand its board membership throughout the remainder of 2025. We're accepting applications from committed, informed, passionate, courageous volunteer leaders who want to help guide VoWW's growth and evolution as it strives to help keep sickle cell warriors alive through better treatment, care, policies, and practices. Download the Interest Packet (below) to learn more about the Board of Directors and Advisory Council roles.