Programs
Providing grief support as we advocate through loss. Increasing access to healthcare. Educating patients and providers. Making ER guidelines actionable. Listening to individuals with sickle cell. Fighting for the community. That's what we do.
Upcoming Activities
Advocating through loss
We know grief ebbs, flows and shifts shape over time, but it's always a moment or memory away. Drop in to remember or just to say their name with others who are on this journey of loss and advocacy.
We're here first Thursdays from 8-9 p.m. EST. Next call: Thursday, Nov. 6.
Your Voice Has A Place
Our voices can carry power on behalf of our Winged Warriors and for all the warriors still fighting. To join our community of VoWW Changemakers, please complete this form.
We welcome you to this work. There’s plenty to be done.
Quality Emergency Care Matters
Sickle Cell STAT is a guideline-based emergency sickle cell care initiative that provides patients, caregivers, and providers with critical information in an easy-to-use and understand format. Access the printable card for free and share it with people who know you and help with your care, including family, friends, advocates, and providers. Learn more about the guidelines, watch videos, check out our Care Map for treatment ratings, connect to the American Society of Hematology and American College of Emergency Physicians point-of-care tool, and more.
