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About Voices of Winged Warriors

Our Mission

Voices of Winged Warriors (VoWW) unites the advocacy of caregivers and allies who have lost loved ones to sickle cell disease.

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​Purpose

VoWW aims to help grievers heal and channel their passion and expertise to radically improve emergency care, mitigate ongoing SCD complications through better healthcare access and maintenance treatment, educate medical associations, and create and impact other changes that transform the landscape of living with sickle cell.

Our Vision

One day, every person diagnosed with sickle cell disease will be provided with curative treatment at birth, ample insurance to cover care, knowledgeable and non-biased medical practitioners, and public health policies that support equitable application of legal remedies, giving them access to a quality of life free of the complications of SCD and its subsequent medical, social, and economic barriers.

Communities We Serve

young african american woman lying in hospital bed and looking at her mobile phone, health
Father and son interacting with a pediatrician in a living room as the child plays with a
Patient X-ray
Five diverse young people having a conversation with psychologist during a group therapy s
A young woman talking on the radio
  • Individuals with sickle cell

  • Caregivers of individuals with sickle cell (living and Winged)

  • Medical professionals who care for and treat individuals with sickle cell

  • Health-adjacent professionals (social workers, educators, pharmacists, insurers, etc.) who provide services to individuals with sickle cell

  • Scientists, researchers, pharmaceutical companies that develop treatments for individuals with sickle cell

  • Media and those who have the power and ability to promote our cause

  • The public at-large

We vow to help individuals with
sickle cell live life to the fullest.

VoWW is committed to creating change through our critical Points of Action:

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Emergency Care

Knowledge, Equity, & Accountability

Speaking Out

Education & Economic Empowerment

Healing & Support​

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